| | TABLE OF CONTENTS | PAGE |
| | Thank You Dixie | iv |
| | Dedication Kaya Sunshine | vi |
| | Dedication Lucas Tyler | viii |
| | Forward | xvii |
| Section I ~ Changing Perspectives |
| 1 | Looking Through A Telescope,By Julian Whitaker, M.D. | 1 |
| 2 | Einstein Syndrome,By Miriam Kauk | 3 |
| 3 | Baby's Brain,By Sharon Begley with Mary Hager | 5 |
| 4 | Parent Perspectives ~ Changing Perspectives | 11 |
| | What Makes Us So Special?By Laura Heigl | 12 |
| | Father to Father, By Josh Carpenter | 14 |
| | Life With Jenni~Rose,By Donna Stamey | 17 |
| | A Father's Story,By Tom Baker | 20 |
| | Life With Brady,By Andrea and Eddie Mitchell | 23 |
| | God, Do You Care,By Miriam Kauk | 25 |
| | Plans For A Future and Hope,By Ted Baird | 26 |
| | Alicia~It's Never Too Late!By Debi Croteau | 27 |
| | Keep the Bar High,By Lloyd Reece | 29 |
| | Dear Brother,By Clint Cunningham | 30 |
| | We're In This Together, By Jeff Strobel | 31 |
| | Karen Gaffney,By The Karen Gaffney Foundation | 33 |
| | My Friends Call Me Suj, By Sujeet Desai and Sindoor Desai | 35 |
| Section II ~ Targeted Nutritional Intervention (TNI) |
| 5 | Trisomy 21 Research Foundation & Targeted Nutritional Intervention, By Lawrence Leichtman, M.D. and J. Paul Spurlock, D.V.M., | 38 |
| 6 | Antioxidant Intervention,By Steven Wm. Fowkes | 53 |
| 7 | Nutritional Intervention in Down Syndrome,By Steven Wm. Fowkes | 59 |
| 8 | TNI in the Treatment of Children and Adults with Down Syndrome,By Lawrence Leichtman, M.D. | 64 |
| 9 | Basic Cell Biology for Parents of a Child with Down Syndrome - or - Doesn't Anybody Speak English Around Here? By Ginger Houston-Ludlam | 70 |
| 10 | Biochemistry in Down Syndrome and Questions Arising,By David H. Swenson, Ph.D. | 77 |
| 11 | Stacking the Deck in Your Child's Favor, By David H. Swenson, Ph.D. | 99 |
| 12 | Composition of NuTriVene-D,By David H. Swenson, Ph.D. | 101 |
| 13 | A Case for Piracetam,By Steven Wm. Fowkes | 106 |
| 14 | Why Vitamin and Mineral Supplementation is Helpful for Patients with Down Syndrome, By | 114 |
| | International Nutrition, Inc. | |
| 15 | International Nutrition |
| | About International Nutrition | 119 |
| | Frequently Asked Questions | 120 |
| | NuTriVene-D Safety | 122 |
| | Recommended Protocol | 123 |
| | NuTriVene Prenatal Formula | 125 |
| | International Nutrition Product List | 126 |
| | Parent Representatives | 127 |
| 16 | Parent Perspectives ~ Targeted Nutritional Intervention |
| | Tom and NuTriVene-D,By Margy Dvorsky | 130 |
| | Griffin,By Lee Ann Sotok | 134 |
| | Nathan, By Linda Drake | 136 |
| | Daniel,By Tamera Ragan | 139 |
| | A Mother's Story,By Ann Marsilio | 141 |
| | J.D.,By Becky Goldsmith | 143 |
| | Noah,By Clover Lea | 148 |
| | John,By Jenny Marrs | 152 |
| | Brian,By Marcia and Dean Jones | 154 |
| | Brian's Tribute,By Bonnie Peterson | 155 |
| | A Jones Family Update, By Marcia Jones | 156 |
| | Stefan,By Toni Slowinski | 157 |
| | Nathan,By Michele Mikolosko | 159 |
| | Daniel,By Leo Falkenberg-Boas | 161 |
| | Lucas,By Irene James | 163 |
| | Drew,By Judy McKenna | 165 |
| | Carmen Christi,By Ginger Houston-Ludlum | 169 |
| | Brianna Siobhan,By Brian Cook | 171 |
| | Sean's Story,By Julie Romero | 173 |
| | For the Love of Five,By Nancy Scherbert | 175 |
| | Three Things About Jared,By Suzanne Blumenfeld | 177 |
| | Alex Shepherd, By Caroline Shepherd | 180 |
| | Scott, By Linda Kane | 182 |
| | Malachi, By Helen Baker | 183 |
| | Malachi ~ My Observations, By Dr. Philip R. Byler | 184 |
| | It Gives Me Great Pleasure, By Linda Strobel | 185 |
| Section III ~ Parent To Parent Support |
| 17 | Reaching For The Stars,By Jenny Marrs | 188 |
| 18 | Why TNI, By Ginger Houston-Ludlam | 200 |
| 19 | The True Cost of TNI, By Ron Hathcock | 202 |
| 20 | What To Say,By Sandra McElwee | 204 |
| 21 | Just the FAQ's (Frequently Asked Questions), By Ann Marsilio | 212 |
| 22 | Helpful Hints,Contributed By Ginger Houston-Ludlam, Ann Marsilio and Nikki Schmid | 216 |
| Breastfeeding |
| 23 | Breastfeeding A Baby with Down Syndrome, By Teresa Board and La Leche League | 221 |
| 24 | Breastfeeding Your Baby with Down Syndrome, By Debi Mitchell | 227 |
| 25 | Parent Perspectives ~ Breastfeeding |
| | Mary,By Miriam Kauk | 231 |
| | Jason & Jaime,By Karen Bennetto | 233 |
| | Emily,By Kathy Beckett | 234 |
| | Micah,By Robin Williams | 235 |
| | Noah,By Clover Lea | 236 |
| | Nicholas,By Dana Halle | 238 |
| | Nicolas,By Linda Rushing | 239 |
| 26 | Twins |
| | Two Little Voices, By Carolyn Levitt | 241 |
| | Gracie & Tad,By Kelly Kile | 243 |
| | Elena & Jenna, By Patricia Davis | 244 |
| | Jason & Jaime, By Karen Bennetto | 246 |
| Section IV ~ Therapies |
| Apraxia, Language Skills, Speech Therapy, and Signing |
| 27 | An Introduction to Speech Production Disorders,By Nancy Lucker-Lazerson, MA, CCC-SLP | 249 |
| 28 | Oral Motor Therapy,By Debra Beckman | 252 |
| 29 | Suggestions for Enhancing Language Development,By Wee Speech | 267 |
| 30 | Language Acquisition in Children with Down Syndrome,By Robert J. Doman, Jr. | 269 |
| 31 | Parent Perspectives ~ Signing, Speech |
| | Mary & Signing,By Miriam Kauk | 277 |
| | Daniel & Signing,By Tamera Ragan | 278 |
| CranioSacral Therapy and Sacro Occiptial Technique |
| 32 | The Therapeutic Value of the Craniosacral System,By John E. Upledger, D.O., O.M.M. | 280 |
| 33 | Parent Perspectives ~ CranioSacral Therapy | 285 |
| | A Parent's Perspective on Cranial Osteopathy,By Debra Janison | 286 |
| | CST & Gracie,By Linda Strobel | 289 |
| | CST & Nicolas,By Linda Rushing | 290 |
| | CST & Benjamin, By Ann Gerber | 292 |
| Feeding Skills |
| 34 | Feeding Issues in Down Syndrome, By Sharon Fiocca | 296 |
| 35 | Food Sensitivities; the Hidden Problems, By Robert J. Doman, M.D. | 305 |
| 36 | Suggestions for Enhancing Feeding Skills,By Wee Speech | 307 |
| 37 | Parent Perspectives ~ Feeding Skills | |
| | Hypersensitivity & G-Tube Feeding,By Julie Romero | 309 |
| | Feeding Issues & Milk Intolerance,By Laura Bradshaw | 310 |
| Infant Massage |
| 38 | Infant Massage, An Introduction,By Angela Sinclair | 314 |
| 39 | The Benefits of Baby Massage,By Jean Keller | 320 |
| 40 | Here's How: Baby Massage,By Shannon Summers | 322 |
| 41 | Touch Early and Often,By Tammerlin Drummond | 325 |
| 42 | Infant Massage; Something Natural,By Carolyne Young and Manidoo Gi Miini Gonaan | 327 |
| National Academy for Child Development (NACD) |
| 43 | Down Syndrome~Perspectives,By Robert J. Doman, Jr. | 330 |
| 44 | The Learning Environment, By Robert J. Doman, Jr. | 335 |
| 45 | Establishing A Positive Environment Through Data Collection, By Robert J. Doman, Jr. | 337 |
| 46 | Child Management, By Robert J. Doman, Jr. | 339 |
| 47 | Dominance and Emotionality, By Robert J. Doman, Jr. | 341 |
| 48 | Parent Perspectives ~ NACD | |
| | Gracie,By Kelly Kile | 344 |
| | Tim's Story, By Kate and Roland Browne | 345 |
| | John and the Art of Learning, By Jenny Marrs | 346 |
| | If It’s Going To Be…It's Up To Me!, By Linda Strobel | 349 |
| | Maren, By Ruth Howard | 350 |
| | Parents Are the Solution,By Lynda W. Bates | 352 |
| | Ryan Hindman, By Mark and Laurie Hindman | 354 |
| | A True Olympian, By Rita Crocker | 356 |
| Occupational Therapy |
| 49 | Occupational Therapy and Down Syndrome, By Karlyn Meyers, OT | 359 |
| Physical Therapy |
| 50 | Why Physical Therapy, By Patricia C. Winders, PT | 361 |
| Sensory Integration |
| 51 | Sensory Integrative Dysfunction in Young Children,By Linda C. Stephens | 366 |
| Therapeutic Riding |
| 52 | Therapeutic Riding: An Introduction,By Jenny Marrs | 371 |
| 53 | Rocky, Did You Know?,By Jenny Marrs | 373 |
| Yoga |
| 54 | Yoga for the Special Child; A Book Review, By Jenny Marrs | 376 |
| Section V ~ Medical |
| 55 | Parent's Guide to Doctors, Disabilities and the Family, ,By Suzanne Ripley and The National Information Center for Children and Youth with Disabilities | 380 |
| 56 | Medical Access,By Ann Marsilio | 394 |
| 57 | Notes on Surgery For Your Child with Down Syndrome, By Nikki Schmid | 396 |
| Autism |
| 58 | Diagnosis of Autism in Children with Down Syndrome,By Glenn Vatter | 400 |
| 59 | Autism in Children with Down Syndrome, By Cyndi Ringoen | 407 |
| Celiac Disease |
| 60 | Celiac - An Introduction,By Scott Adams | 413 |
| 61 | Broad Overview of Celiac Disease,By Stephen J. Gislason, M.D. | 415 |
| 62 | Safe & Forbidden Food List,By Scott Adams | 422 |
| Dentistry |
| 63 | Dental Care for the Patient with Down Syndrome,By Elizabeth S. Pilcher, DMD | 429 |
| The Ears |
| 64 | Anatomy and Function of the Ear,By University of Washington School of Medicine | 435 |
| The Eyes |
| 65 | Vision Problems in Children with Down Syndrome, By Michael Gallaway, O.D. | 444 |
| 66 | Importance of Visual Pursuits and Convergence, By Robert J. Doman, M.D. | 447 |
| The Heart |
| 67 | The Heart,By H. A. Hennein, M.D. and PediHeart.Org | 450 |
| 68 | Oxidative Stress in Children During Heart Surgery,By Steven Wm. Fowkes | 455 |
| Hirschsprung Disease |
| 69 | An Introduction to Hirschsprung Disease,By Victor Bishop | 458 |
| The Thyroid |
| 70 | The Thyroid~An Overview,By Thyroid Association of Canada | 462 |
| Section VI ~ Education (United States Laws) |
| Individual Education Programs (IEP's) |
| 71 | Understanding the Special Education Process; An Overview for Parents, By PACER Center, Inc. | 468 |
| 72 | How To Participate Effectively in the IEP Process,By Learning Disabilities Association | 473 |
| 73 | Advocating For Your Child,By The Federation for Children with Special Needs | 478 |
| 74 | Special Education: Nine "Rules of Thumb" for Parents,By Robert Crabtree, Esquire | 482 |
| Individuals with Disabilities Education Act (IDEA) |
| 75 | PACER Center Looks at IDEA ’97, By PACER Center, Inc. | 487 |
| | Homeschooling |
| 76 | Special Needs Children: Parents Are the Experts!By Robert J. Doman, Jr. | 497 |
| 77 | Parent Perspectives ~ Homeschooling | |
| | Early Intervention,By Miriam Kauk | 500 |
| | Socialization and Homeschooling,By Jane Bernardel | 502 |
| Section VII ~ Our Kids |
| 78 | Photo Gallery; Our TNI Family Photo Album featuring the poem MeBy John Quentin Marrs & Mom | 504 |
| | Video Gallery; John Marrs, Kaya Sunshine Garner & Jenni~Rose Wood Noe | VG |
| 79 | Appendix | |
| | Down Syndrome Resource List | xx |
| | Glossary | xxxii |
| | References | xxxviii |
Lucas Tyler James with Papa T.W.
